Menu

MN RSD Coalition

header photo

Welcome

The MN RSD Coalition is an organization dedicated to providing support for those affected by Reflex Sympathetic Dystrophy Syndrome (RSD), more recently referred to as Complex Regional Pain Syndrome (CRPS) since 2002.

We believe a positive outlook is a vital part of our care. Everyone has a right to be heard, believed, and treated with respect and dignity. 

By using a humanistic approach, we encourage each member to become more self-aware, find their inner strengths, learn positive ways of communication, and use various pain reduction techniques. 

Open, honest communication and full compliance with a pain program as prescribed by your physician, humor, and various relaxation techniques empowers a person with RSD/CRPS to better control many aspects of life with this disease.

Your pain care provider may prescribe physical therapy, talking with a pain therapist, and various treatment modalities they deem necessary in providing you with the best care possible. Even though it is difficult at times, staying physically and mentally active is vital to ensure a full, happy life with RSD/CRPS.

Certain environmental factors such as weather, state of mind, and stressors play a significant role in our pain levels. We have little to no control over many of those factors, but some we do. It is how we react to areas we have no control, coupled with our state of mind at the time, that can dictate the severity of our pain. Each person has the power, the ability to decide how he or she will react to the pain. Being cognizant of these issues gives us the opportunity to either simply exist or fully live our lives.

That choice is up to each person. We are here to help in any way we can.

News Feed

(Updated: 8/19/2017)

Group Meetings

  • Our next group meeting will be on Saturday, August 26th from noon to 2pm at the Savage Library.  The primary topic of discussion is still to be determined at this time.  If you plan on attending please RSVP by going to our 'Support Groups' page and submitting the RSVP form or by calling Samantha at 952-220-4596 or Diane at 651-459-5856.  [Update 8/19/2017]

Site News

  • Last month's group discussion topic has been posted to the forum in the members only section of the website. [posted 3/12/2017]
  • The 2017 group meeting calendar is up on the 'Support Groups' page. [posted 1/21/2017]
  • New products are being uploaded to our Awareness Merchandise stores, Zazzle & Logo Sports Wear. [posted 12/5/2016]
  • A new app has been added to the resources page and an update to a treatment article has been made on the forum in the members area. [posted 8/11/2016

Coalition News

  • It is with heavy hearts that we must inform you of the passing of one of our members and former leads. Michele Hannah  passed peacefully at  her home on the evening of Friday July 28th, 2017. She was 44 years old  A brilliant individual, talented photographer and good friend she was struggling with RSD & other health issues and at this time no one is quite sure what happened.
     
    Michele is and will always be deeply loved by her family and friends and will be missed by all who know her. 
     
    Michele's Obituary link is below. We ask that you keep Michele, her mother Dae and her other loved ones in your thoughts and prayers at this time . Please sign the guestbook and if possible attend her services 
     
     
    Bonnie, Diane, Samantha, & Todd
  • Thank you Marina V for allowing us the use of one of your wonderful songs,  The Strength I Need, as our theme song.  Please support Marina V. by going to her web site and seeing more on this very beautiful and talented artist! www.marinav.com